انقذوا ماريا 1 سنة - ضمور عضلي شوكي
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Raised of USD 100,000 Goal
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Eenass Mohammad Created this campaign
أنا إيناس، أم الطفلة ماريا عمرها سنة من الأردن. شخصت بضمور عضلي شوكي تايب 1. علاجها الوحيد حقنة زولجنسما سعرها 2.5 مليون دولار. عندنا حملة جوفندمي للمتبرعين العالميين وهذه الحملة على فنداهوب للمتبرعين العرب من الأردن. التقارير الطبية والفحص الجيني موجودة. حسابي البنكي أردني وجاهز للتحقق. ساعدونا ننقذ ماريا.
My name is Enas, mother of baby Maria, 1 year old from Jordan.
Maria was diagnosed with SMA Type 1 (Spinal Muscular Atrophy), a severe genetic disease that weakens every muscle. She cannot sit alone, and without treatment she will lose the ability to breathe.
Her only hope is Zolgensma, a one-time gene therapy that costs $2.5 million USD. Doctors in Jordan confirmed she needs it urgently.
We have an American GoFundMe for international donors, and we opened this FundaHope campaign for Arab donors in Jordan and the Middle East.
We have all medical reports, genetic test, and proforma invoice from the hospital. All donations will go directly to Zolgensma and hospital costs. We will post updates.
Jordan Bank Account is ready for payout - IBAN will be provided for verification.
Please help us save Maria. Even $5 brings us closer.
Mother: Enas Alliftawy
Instagram: @enas.alliftawy
TikTok: @enasalliftawy0
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Organizer
Eenass Mohammad
Amman, Jordan
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