Lucia is a brave young girl living with Rett Syndrome, a rare genetic neurological disorder that affects nearly every aspect of daily life, including communication, mobility, and independence.

For the first time, there is real hope on the horizon. A gene therapy designed to address the underlying cause of Rett Syndrome is expected to become commercially available in 2027, offering families like Lucia’s a chance they never thought possible.

We are launching this campaign to begin raising the funds needed to access this life-changing treatment as soon as it becomes available. The costs associated with gene therapy, specialized medical care, travel, evaluations, and treatment-related expenses are expected to be significant, and preparing now gives Lucia the best possible chance to receive the therapy without delay.

Every donation brings Lucia one step closer to accessing a treatment that could help change the course of her future.

Thank you for supporting Lucia and giving her hope for a brighter tomorrow.