Dear friends and community,
I'm Ali's wife and it is with a heavy heart that I share the story of my husband, who just turned 30. Few years ago Ali stared developing serious visual symptoms that showed up starting with tripping and knocking into stuff that where right infront of him, unable to see at night and taking him a little too long to notice things around. So we went to a specialist who diagnosed Ali with Retinitis Pigmentosa a rare eye disease affecting around one in every 4,000 people worldwide, that causes visual impairment that impacts daily life and when we asked about the next steps, the doctor replied, “There’s really nothing you can do about this” and estimated that he will lose his sight in 7 yrs from now. The shocking news where devastating and the stress & sadness overtook us for a while. However, although retinitis pigmentosa is not treatable you can still get help to manage the condition with restoration therapy to restore visual function and increase functionality of preserved cells which leads to improvement in vision and slower the progression of the disease and thus he can preserve his vision for a longer period of time. Going through restoration therapy is Ali's only hope for him to preserve his vision and fulfill his only wish of expanding our family and have children without him being worried that he wont be able to see there faces or protect them from any harm.
So my friend your support will mean the world for us, it will be an inspiration to hold out hope, especially from people who understands the emotional side of things and what you and your family members are going through.
Hope this letter reaches you. Thank you Sincerely.